Anyone have a child with a Heart Murmor?

[chacha]

Just wondering if anyone has a child with a heart murmor where they were referred to a Cardiologist??

I have three kids ages 7, 6 and 4. All three have a heart murmor that was noticed at birth. Both my hubby and I have heart murmors noted in our families and each of us have one. We have always been told they were nothing to worry about. When my son (7) went for his kindergarten physical, we were told to bring him in every 6 months to have it checked, but nothing to alarmed about at the time. My daughter (6) went in for her kindergarten screening and they said they could now here it on the right side and they want her to go to the Cardiologist in Marshfield to have it checked out. So, after thinking this over, I call the Dr back and ask questions...the pediatrician says it is nothing to be alarmed about and the only reason she referred her is because my daughter is 5 and they like to have them checked at that age. So, I ask WHY my son was not referred and they have no answers for me. So, here I am left wondering what is really going on here. Has anyone else had to deal with this before? What was the outcome? Please don't try to sugar coat it, be honest with me....I need answers!! :( :confused: :mad:

[MsLynn]

well my middle child has a heart murmur,, born with PULMONARY STENOSIS. he had a valve that was too small and had to have surgery to enlarge it when he was 9 weeks old. and has regular visits to the cardiologist to keep close tabs on it, since the valve will no longer close on its own, and have to make sure blood doesn't start flowing backwards in the the chamber and start enlarging the heart. have to make sure he has antibiotics before any kind of dental work and with stitches he has to have extra, just little things like that, he's 9 now and SO FAR SO GOOD, he's able to play football,basketball,baseball, just have to keep checking

[Anthill]

My babies were born 6 weeks early. The Peditrician (sp) heard something and refered us to a CArdo. They did testing they were only about 2 months old at the time. The Dr. told us it was nothing to worry about. THey have what is called a Stills Murmor. (it has a longer name, but for us to remember it, he gave us this name). He told us that by the time they reach puberty it should go away. And that if for some reason we do take him to the hospital / dr and they mention to us about the heart murmor we are to tell them that it is Still Murmor etc. So he told us not to worry about it, we told our Peditrician and she seemed ok w/ the answer. They are now 9 months old and seem ok. Hope that helps

[LoveBugg]

My brother, my nephew and myself all have heart murmurs. We turned out ok... But we are all dorks LOL.. Except my nephew, but he was born with heart problems (murmurs and something else..)

[Steena]

I was told that my youngest son had a heart murmur when he was a baby (not an infant). There was never a big deal made out of this, and doctor said that many outgrow it. He is now 6 yrs old, and at last check-up, it was not detected. But everytime he goes in, I will ask about it.

[cpbaby]

My 10 yr old was diagnosed with a heart murmur at 2 years old. The ped said he had it before but most outgrow it by age 2. We were sent to the cardiologist and they did a full work up. They said it was an "innocent" murmur, which only means there is no reason for the murmur detected. Nick had to go back once a year for check ups. We did this for 4 or 5 years and then changed insurance companies. The cardiologist we were seeing wasnt on our insurance so we stopped going since it was "innocent". Finally, he wanted to play baseball so I asked his ped for a referral to a cardiologist that was on our insurance. He sent us to Vanderbilt Childrens Hospital. They did an echocardiogram(ultrasound of the heart and the arteries in the neck) and sent us home. Three days later the ped called me and said he was fine to play baseball, but he had been diagnosed with PFO(Patent Forum Ovale). Apparently, he has a small hole in his heart that is getting larger as he grows so it wasnt seen earlier. The ped said he MIGHT have to have surgery later, but then again, he may not. We have to remember to ask for antibiotics before any dental appointments but that is the only restriction he has.

I wouldnt worry too much. Between the time your son was 5 and your daughter turned five, there may have been new recommendations for heart murmurs.

[schsa]

I was born with heart murmmer and I have grown up to be an adult. Just remind your doctor when they see your children. Chances are they will outgrow it like the rest of us.

[Ludi815]

I know it doesnt compare to a child but since my son is grown my baby is my pomeranian who is 5 months old-they have me pretty scared about his heart murmer-they are saying it is pretty bad. I just lost a puppy (6 months old) 2weeks before I got this one. All as I CAN say is that you must be very scared and I can understand-its hard when you dont get a straight answer from the doctors.

Ludi

[bulldog6186]

I was born with a heart murmor, 31 yrs later I still have it. I have this card I have had since I was very young, it's in my wallet all tattered up, I couldn't read it for the life of me if I wanted. I know it's has something to do with showing the dentist when I go in for dental work. I guess now that I'm a big girl I can remember to tell him on my own.


As someone else mentioned, when you have your children at the doctors just remind him/her about the murmors if they don't mention it to be sure the muror was still detected, that way any changes can be noted.

[Kiddle4]

My 81/2 month old son is a 2 vessel cord baby born at 38 weeks at 6 pounds. He has a Still's murmur, which a PP referenced and Pulmonary Stenosis, also referenced by a PP. He sees a cardiologist every 6-8 weeks. He began these visits at 2 days old. He's doing great.

[TXNGIRL]

Just wondering why the antibiotics are needed when seeing a dentist? I was just recently diagnosed with a heart murmur with my last pregnancy. Scared the crap out of me when they sent me to the cardiologist for tests. Turned out that it was just precautionary. The pregnancy was bringing out symptoms of the murmur - palpitations mainly. I had to wear a monitor, keep a palpitation diary and they ran a few EKG's and a ultrasound of my heart. The whole cardiologist visit was a bit scary - but all turned out to be just fine. Hope you get good news.

[YankeeMary]

Just wondering why the antibiotics are needed when seeing a dentist? I was just recently diagnosed with a heart murmur with my last pregnancy. Scared the crap out of me when they sent me to the cardiologist for tests. Turned out that it was just precautionary. The pregnancy was bringing out symptoms of the murmur - palpitations mainly. I had to wear a monitor, keep a palpitation diary and they ran a few EKG's and a ultrasound of my heart. The whole cardiologist visit was a bit scary - but all turned out to be just fine. Hope you get good news.
Its a precaution, because there is alot of "germs", bacteria in the mouth, messing around in there could cause infections to move around, thats what my dentist told me because I have to be "medicated" with antibodics before any dental work, because I have a SCS (spinal cord stimulator).

[melissar]

I personally feel as long as you are getting answers from your cardiologist and not your regular doctor you are fine.... My daughter was born with a slight hole.... not a hole that they close(not sure) Hole by her left chamber. She goes in every year and undergoes echocardiograms to check the pressure in her lungs and things... She has an irregular heartbeat but the cardiologist does not think she needs meds at this time.... We do go back In May and I am kind of freaked about that one because if the hole has not closed on its own and or bigger they will have to manually go in.....The cardiologist says most children do outgrow this though and I really shouldn't worry about it. She is growing just fine and when she went in for her three year old exam her pediatrician stated he could not hear the irregular heartbeat but the other day she said mommy my chest is pounding really hard and it hurts... so I told her to go and sit down and i called the cardiologist and she says its not uncommon with irregular heartbeats.... so not to worry....We do have a checkup in a few weeks though just to check it out....

Remember it may be just hereditary considering all your children have and yourself and your husband.....

[joraemik]

As a mom to a child with a heart defect - you need to get these checked out by a cardioligist. My daughter was dignosed with Tetralogy of Fallot at 3 days old. Hers is one of the more complicated heart defects and she has already been through surgery and will most likely need more. Even if you go through the tests and everything turns out fine at least you won't be wondering and having to worry any more.

Monica