I hate reactions to medication - Page 2 - Big Big Forums

cathych · 10-04-2009, 11:25 PM

I have taken neurotin for years, it is about the only thing that controls my epilepsy.

jcw · 10-05-2009, 01:31 AM

specailk3342 · 10-05-2009, 07:57 AM

Quote:

Originally Posted by belle5691

Thank you ALL for the very kind words and hugs. It really does mean more than you know.

When his doctor called yesterday in response to the page, she had us stop the medication immediately, and she will be looking for something different for him at his appointment on Tuesday.

He's had a reaction to Regulan, Morphine, Phenergan, Coreg, all Penicillin's, Doxycycline, and now Neurontin. Kinda bad for someone who is on as much meds as he is.

Special K, my thoughts are with you and your husband as I know you have to be going through a lot of the same things---and probably more.

Msginna, I hope they find answers for you soon. I know it is as frustrating for you as it is your family. But it means a lot to have them there for you.

Fleabones, pepperpot, and Gmyers, those words and hugs mean so much today. They really do. Thank you.

Thank you, Belle5691. It's been a pretty rough road so far with more to follow. This medication has been the only good thing that's happened so far. Everyone is different and I hope they find something quick to help your husband. My thoughts and prayers will be with you, also.

belle5691 · 10-05-2009, 11:21 AM

Quote:

Originally Posted by cathych

I have taken neurotin for years, it is about the only thing that controls my epilepsy.

I read that epilepsy is what the medication was originally intended for. I'm glad that it works well for you!

For me, it's getting a little scary because DH has started having reactions to medications at a faster pace, and it seems they are constantly reworking his meds, so I guess paranoia about whats going to happen next when they prescribe something new bugs me sometimes.

cathych · 10-05-2009, 11:27 AM

since it IS what it is intended for (as an anticonvulsant), I can understand why someone feels like they are suddenly crashing when they take it. If I do not take it, my brain does not work right, I go at a million miles an hour, and have a seizure. It puts me at a normal functioning level. I know now they use it for all kinds of things, my aunt took it when she had shingles.

belle5691 · 10-05-2009, 11:33 AM

Quote:

Originally Posted by cathych

since it IS what it is intended for (as an anticonvulsant), I can understand why someone feels like they are suddenly crashing when they take it. If I do not take it, my brain does not work right, I go at a million miles an hour, and have a seizure. It puts me at a normal functioning level. I know now they use it for all kinds of things, my aunt took it when she had shingles.

My mom was prescribed the medication for neuropathy in her feet, and DH was prescribed for the hand and leg movements. I take tramadol for constant pain, and was told sometimes they prescribe neurontin for the same things I have. I imagine that I probably wouldnt have a reaction to it, who knows, I have a high tolerance it seems for meds, while DH has and is becoming even more so a very low tolerance.

volkswagon7 · 10-05-2009, 04:54 PM

My late DH was prescribed Neurotin for his leg and had all the side effects. He was taken off of it because of that. Ended up taking morphine for the leg pain. He was terminal and on hospice for 14 months before he died. He was the same, he got all the side effects of every med he was on. Had to decide if the side effects outweighed the good things that a med did.

sunniekiss · 10-06-2009, 11:21 AM

Quote:

Originally Posted by belle5691

My mom was prescribed the medication for neuropathy in her feet, and DH was prescribed for the hand and leg movements. I take tramadol for constant pain, and was told sometimes they prescribe neurontin for the same things I have. I imagine that I probably wouldnt have a reaction to it, who knows, I have a high tolerance it seems for meds, while DH has and is becoming even more so a very low tolerance.

I was given Neurontin for RSD. I took 3 pills in the morning, 2 at lunch, 2 at dinner & 3 before bed.
Then Zonegran was added. Then I was weaned off Zonegran & then Neurontin. I tried Trileptal, Topamax & there was one other but I reacted to all of them even worse than the neurontin. I am talking ER visit reaction.
Then I went on Cymbalta which didn't work for the pain at all.
Finally there was Lyrica which was supposed to be the new Neurontin but w/o the nasty side-effects. For me it wasn't any better.
I did end up having spinal surgery but I still have pain. I just learned to live with it. I have to keep a space heater on my foot from September until June. If it is cold & damp my ankle is throbbing. The weird thing is, it hurts less when I wear high heels as opposed to flats. Sneakers are unbearable uncomfortable.

Hope your hubby is doing better.

tunisia · 10-06-2009, 09:17 PM

so sorry for both you and your DH. I know I had a friend on Neurontin and when the doctor started her on it, she gave her 300mg three times a day right from the start! that is an incredibly high dosage to give someone who has never taken it before. Anyway, she said she didn't realize it but her daughter came over and she was vacuuming the rug without it being plugged in, and didn't have all the attachments on it. She got ornary with her daughter when she asked what she was doing. anywhoo, the doc lowered the dose to 100mg 3x/day and still she felt stoned. Now she is on Lyrica and it works much better for her. she has diabetic neuropathy in her legs.

was your husband taking the Reglan and Phenergan for nausea? is he able to take any anti-emetic? We used to give our patients Zofran for nausea-came out on the market in about 90 or 91 and is not used alot but has very few side effects.

belle5691 · 10-07-2009, 01:58 AM

[quote=

was your husband taking the Reglan and Phenergan for nausea? is he able to take any anti-emetic? We used to give our patients Zofran for nausea-came out on the market in about 90 or 91 and is not used alot but has very few side effects.[/QUOTE]

He had MRSA in a foot ulcer a few years ago, and was in the hospital for 3 months. While he was in, they gave him Zyvox and it made him very nauseous. So they were giving regulan on a regular basis during those 3 months along with the Zyvox. I remember the Zofran being given---but I think it was before Regulan, Im not sure if it didnt help him or what?

He went back to the neurologist today and was givin klonipin.(sp?). We start that one tomorrow.

Hearing the different people with side effects like your friend, my husband, and others even here, I'm apprehensive about the possible side effects from the klonipin.

sunniekiss · 10-07-2009, 05:07 PM

Quote:

Originally Posted by tunisia

was your husband taking the Reglan and Phenergan for nausea? is he able to take any anti-emetic? We used to give our patients Zofran for nausea-came out on the market in about 90 or 91 and is not used alot but has very few side effects.

Zofran is SO expensive though but it does work. I was allergic to Reglan but I swear by Phenegran although IIRC I had it through an IV once & reacted badly to it. Right now I am dealing with one of my nausea attacks that is so bad that I can not even stand to see food on TV. Good news is I am seeing my gastroenterologist on Friday. Bad news is that I will have probably lost another 2 or 3 pounds again which will land me in the hospital again. At least I will have my boyfriend IVan to keep my company

Hope your hubby feels better soon Belle.