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  1. #1

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    Just some thoughts about my son.

    I wrote this earlier today, and just thought I'd share it.


    I'm just sitting here, smelling the homemade spaghetti sauce simmering on the stove, thinking about the past three years. Today is Ben's third birthday. Here is a child the doctors didn't expect to live thru his first night. They didn't tell me, but I think on some unconcious level, I knew, and I spent that first night in the nursery, holding him, feeding him, playing with him, and giving him my love and my strength. Here was a child with a limp right arm, the head a size of a cannonball, that was so bruised, the whole thing looked purple, and lungs that just didn't want to work, because of the fluid. The next morning, he was aware, awake, and making his wants known, to the whole hospital! I brought him home, still not sure of what was wrong with his arm, and thru the help of our doctor, the public nurses, and the Early Intervention people, I learned the words Brachial Plexus Injury. I just remember going to our library to use the internet to learn as much as I could about this. I found some great sites, and some wonderful friends to help me thru this. I watched him grow as I contacted doctors around the country as to what may be available to help my son. I watched him struggle with toys that his brother didn't even think twice about being able to play with, as I planned his surgery. I watched them take my 6 month old child back for a surgery, numbly, because it's the only way I can get thru it. I brought him home, one arm bound to him and watched him smile at people who looked at him pitingly. I jumped for joy when he moved his fingers for the first time and he looked at me as tho I had lost my mind. I wondered as his first birthday came when he would walk, as he gleefully tore everything out of my purse and tried to eat my lipstick. I watched him take his first steps tempered with the pain of knowing his second surgery was planned. I watched again as they took my now 18 month old back to the operating room again. I laughed as he ran from the nurses who wanted to take his tempature the next day. I watched as he became his own little person, bullying his brother, tourturing the dog, bravely going to the doctor for his immunizations, and facing the dentist for the first time. I got angry with him when he wrote on my brand new coffee table with a pen, and put deep scratches in it. I fought with him to go to sleep at night, to understand his therapists just want to play with him (fortunately that didn't take long, now he gets mad when he doesn't go to them). I cried with relief when the doctors said no surgery last year, and cussed with anger when 6 months later he needs it now. I watch my child, now three years old, jumping on his brother's bed, pulling a pillowcase over his head (don't ask me why) and think, I've done everything I can to make sure he's gotten the best I can give him, but ultimately, I've just had to watch as he's made his way in the world, to learn to deal with this injury in his own way. I will fight to the end to give the best to my kids, but I will always, always watch over them.
    Does it really matter?

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  3. #2

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    (((((((((((((jade))))))))))))))

    You have quite the fighter there and a miracle to boot!

    Happy Birthday!!!!

  4. #3

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    That was beautiful!

    ((((((((HUGS)))))))) to you and your family.

  5. #4
    jcw's Avatar
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    That was great. Sounds like a very special little guy with a special family.
    member # 14479
    missing my daughter I love you steph

  6. #5

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    (((hugs)))
    Every day I live I am more convinced that the waste of life lies in the love we have not given, the powers we have not used, the selfish prudence that will risk nothing and which, shirking pain, misses happiness as well.

  7. #6

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    What a wonderful tribute to your love for your son and family!
    Audioslave Rocks!!!!

    ***"If you're going to do something tonight that you'll be be sorry for tomorrow morning, sleep late."***
    Henry Youngman.

  8. #7

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    That was deeply moveing! You are a very strong person and I admire you! You sound like a great parent.
    Hugs to {{{erwinmst}}}

  9. #8

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    That was absolutely beautiful!!! Hugs to you and all your family!!
    ~~

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    Mother of 3 Ashley 5 yrs old and Haley 3 yrs old and my little Angel Adam Taylor Helmes still born on Jan 2,2004! I miss you Adam! I love you my son!

  10. #9

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    {{{{Jade}}}}

    You love those boys and I know they love ya right back!
    'Cause it's all smiles and business these days...
    Ben Folds, "Evaporated"

  11. #10
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    {{{{Jade and Ben}}}}}
    Nothing tastes as good as losing weight feels! 70 lbs. lighter!

  12. #11

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    [[[[[[jadegentle]]]]]]] A beautifully written tribute of a mother's love for her son.

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