found a new page that might be useful
added to the top of the list
http://www.focusas.com/HealthInfoNumbers.htm
Toll-Free Numbers for Health Information
Listed below are selected toll-free numbers for organizations that provide health-related information, education, and support.
This list has been prepared by the National Health Information Center. NHIC is a service of the Office of Disease Prevention and Health Promotion, Office of Public Health and Science, U.S. Department of Health and Human Services.
These organizations do NOT diagnose or recommend treatment for any disease.
http://www.ncpad.org/organizations/
alpha listing of organizations/support groups